Towards a standardized program of transitional care for adolescents with juvenile idiopathic arthritis for Turkey: a national survey study

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dc.authorid0000-0001-9415-1640en_US
dc.authorscopusid8514659100en_US
dc.authorwosidC-5473-2015en_US
dc.contributor.authorSözeri, Betül
dc.contributor.authorŞahin, Nihal
dc.contributor.authorAçarı, Ceyhun
dc.contributor.authorAvar Aydın, Pınar Özge
dc.contributor.authorBaba, Özge
dc.contributor.authorYüksel, Selçuk
dc.date.accessioned2024-02-20T12:03:20Z
dc.date.available2024-02-20T12:03:20Z
dc.date.issued2024en_US
dc.departmentFakülteler, Tıp Fakültesi, Dahili Tıp Bilimleri Bölümü
dc.description.abstractBackground: Juvenile idiopathic arthritis (JIA) is a prevalent childhood chronic arthritis, often persisting into adulthood. Effective transitional care becomes crucial as these patients transition from pediatric to adult healthcare systems. Despite the concept of transitional care being recognized, its real-world implementation remains inadequately explored. This study aims to evaluate the thoughts and practices of healthcare providers regarding transitional care for JIA patients. Methods: A cross-sectional survey was conducted among pediatric and adult rheumatologists in Turkey. Based on the American Academy of Pediatrics’ six core elements of transitional care, the survey included 86 questions. The respondents’ demographic data, attitudes towards transitional care, and practical implementation were assessed. Results: The survey included 48 rheumatologists, with 43.7% having a transition clinic. The main barriers to establishing transition programs were the absence of adult rheumatologists, lack of time, and financial constraints. Only 23.8% had a multidisciplinary team for transition care. Participants agreed on the importance of coordination and cooperation between pediatric and adult healthcare services. The timing of the transition process varied, with no consensus on when to initiate or complete it. Participants advocated for validated questionnaires adapted to local conditions to assess transition readiness. Conclusions: The study sheds light on the challenges and perspectives surrounding transitional care for JIA patients in Turkey. Despite recognized needs and intentions, practical implementation remains limited due to various barriers. Cultural factors and resource constraints affect the transition process. While acknowledging the existing shortcomings, the research serves as a ground for further efforts to improve transitional care and ensure better outcomes for JIA patients transitioning into adulthood.en_US
dc.identifier.citationSözeri, B., Şahin, N., Açarı, C., Aydın, P. O. A., Baba, O., Bağlan, E., … Sönmez, H. E. (2024). Towards a standardized program of transitional care for adolescents with juvenile idiopathic arthritis for Turkey: a national survey study. Pediatric Rheumatology, 22(1), 1–8. https://doi.org/10.1186/s12969-023-00943-3en_US
dc.identifier.doi10.1186/s12969-023-00943-3
dc.identifier.endpage8en_US
dc.identifier.issn1546-0096
dc.identifier.issue1en_US
dc.identifier.pmid38167070
dc.identifier.scopus2-s2.0-85181247651
dc.identifier.startpage1en_US
dc.identifier.urihttps://doi.org/10.1186/s12969-023-00943-3
dc.identifier.urihttps://hdl.handle.net/20.500.12428/5675
dc.identifier.volume22en_US
dc.identifier.wosWOS:001138114200002
dc.identifier.wosqualityQ2
dc.indekslendigikaynakWeb of Science
dc.indekslendigikaynakScopus
dc.indekslendigikaynakPubMed
dc.institutionauthorYüksel, Selçuk
dc.language.isoen
dc.publisherBioMed Central Ltden_US
dc.relation.ispartofPediatric Rheumatologyen_US
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanıen_US
dc.rightsinfo:eu-repo/semantics/openAccessen_US
dc.rightsAttribution 3.0 United States*
dc.rights.urihttp://creativecommons.org/licenses/by/3.0/us/*
dc.subjectAdolescenten_US
dc.subjectArthritisen_US
dc.subjectChronic diseaseen_US
dc.subjectJuvenileen_US
dc.subjectTransition to adult careen_US
dc.titleTowards a standardized program of transitional care for adolescents with juvenile idiopathic arthritis for Turkey: a national survey study
dc.typeArticle

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