Understanding stigma in multiple sclerosis: workplace discrimination, social challenges and psychological impacts

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dc.authorid0000-0002-9747-5285
dc.authorid0000-0002-9697-9510
dc.authorid0000-0002-7907-5472
dc.contributor.authorBulbul, Nazli Gamze
dc.contributor.authorTunc, Abdulkadir
dc.contributor.authorBunul, Sena Destan
dc.contributor.authorDemir, Serkan
dc.contributor.authorSeferoglu, Meral
dc.contributor.authorSivaci, Ali Ozhan
dc.contributor.authorAksoy, Selma
dc.date.accessioned2026-02-03T12:02:51Z
dc.date.available2026-02-03T12:02:51Z
dc.date.issued2025
dc.departmentÇanakkale Onsekiz Mart Üniversitesi
dc.description.abstractBackground Stigmatization in MS patients is an important problem that affects social interaction, work life and daily life. In this study, we investigated the prevalence, severity and especially the effects of stigmatization on work life in MS patients. Methods A cross-sectional study of 420 people living with MS (PwMS) assessed stigma using the NeuroQoL Stigma Short Form and a direct stigma survey. Demographic, clinical, workplace, and social data were collected through an online survey. Statistical analyses were performed.ResultsStigma was prevalent, with 77% reporting stigma in direct surveys and 67.6% scoring > 8 on the NeuroQoL Stigma Short Form. Stigma was more severe in patients with progressive MS and higher EDSS scores. The most disturbing symptoms were fatigue (73.3%), imbalance (46.7%) and attention deficit 50.5%). The most prominent complaint affecting work life was fatigue (41.2%). Only 7.3% of the patients had sought psychological support for this issue. 57.4% of patients had disclosed their illness to their employer and 68.1% to their coworkers.ConclusionsStigma in MS is pervasive, linked to clinical severity, workplace challenges, and social withdrawal. Interventions targeting stigma's psychological and social dimensions, along with workplace education and support are essential.
dc.identifier.doi10.1007/s13760-025-02826-8
dc.identifier.issn0300-9009
dc.identifier.issn2240-2993
dc.identifier.pmid40553376
dc.identifier.scopus2-s2.0-105008932655
dc.identifier.scopusqualityQ2
dc.identifier.urihttps://doi.org/10.1007/s13760-025-02826-8
dc.identifier.urihttps://hdl.handle.net/20.500.12428/34890
dc.identifier.wosWOS:001514505900001
dc.identifier.wosqualityQ3
dc.indekslendigikaynakWeb of Science
dc.indekslendigikaynakScopus
dc.indekslendigikaynakPubMed
dc.language.isoen
dc.publisherSpringer Heidelberg
dc.relation.ispartofActa Neurologica Belgica
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanı
dc.rightsinfo:eu-repo/semantics/closedAccess
dc.snmzKA_WOS_20260130
dc.subjectStigma
dc.subjectMultiple sclerosis
dc.subjectWorkplace challenges
dc.subjectSocial interaction
dc.subjectPsychological support
dc.titleUnderstanding stigma in multiple sclerosis: workplace discrimination, social challenges and psychological impacts
dc.typeArticle

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